What this policy covers.
This Privacy Policy describes how Itsekiri National Congress USA, Inc. (“INC-USA,” “we,” “us”), a 501(c)(3) nonprofit incorporated in the District of Columbia, collects and processes personal data across:
- The public website at itsekirinationalcongress.org.
- The authenticated member portal (/member) and admin tools.
- The Iwere Care telehealth platform for patients, caregivers, and volunteer physicians.
- The Iwere Academy learning platform for students and instructors.
- Donation, event registration, membership, and Convention 2026 checkout flows.
- Our emails, newsletters, WhatsApp groups, and in-person Heritage events.
Three buckets of data.
| Category | Examples | How it arrives |
|---|---|---|
| Identity | Name, email, phone, mailing address, Region selection, role (member, donor, volunteer, patient) | You provide it |
| Transactional | Donation amount, dues status, event RSVPs, program enrollments, last-four card digits (not full PAN) | Stripe · Zeffy · Members-portal |
| Behavioral | Pages visited, referrer, device, coarse geolocation (country/region only), cookie consent state | Auto-collected, aggregated |
| Protected Health (Iwere Care only) | Consult notes, provider-patient messages, demographics limited to clinical necessity | Within the HIPAA-covered subsystem |
| User content | Story submissions, photos, Academy essays, forum posts, bereavement notes | You submit it |
We do not collect Social Security Numbers, passport numbers, immigration status, or full payment card numbers. Full card numbers are handled directly by Stripe / Zeffy and never touch our servers.
Run the Congress. Nothing more.
- Operate programs. Route telehealth consults, enroll Academy cohorts, organize Heritage Trips, issue Convention tickets.
- Communicate. Send member newsletters, dues reminders, event confirmations, and bereavement notices.
- Fundraise responsibly. Thank donors, issue receipts, report aggregated (never individual) giving in financials.
- Govern. Maintain voter rolls for elections, count quorum, run audits.
- Improve. Aggregate analytics (never individual profiling) to improve site and program performance.
- Comply. Meet IRS reporting (Form 990 Schedule B), state charity registrations, and HIPAA where applicable.
We do not sell your data. We do not trade donor lists. We do not run ad retargeting.
Why we are allowed to process.
For members and visitors in the EEA / UK, our lawful bases under the GDPR are:
- Contract — membership, donation, program enrollment, Convention registration.
- Legitimate interests — running a nonprofit, securing the site, governance, measured analytics. Balanced against your privacy.
- Consent — for non-essential cookies and for marketing newsletters. Withdrawable any time.
- Legal obligation — tax and charity reporting, HIPAA, lawful subpoenas.
- Vital interests — limited to emergency medical situations in telehealth.
Named vendors. Auditable list.
| Vendor | Role | Region |
|---|---|---|
| Vercel | Site hosting · CDN | Global |
| Supabase | Authentication · member database | US-East |
| Stripe · Zeffy | Donation processing | US |
| Resend | Transactional email | US · EU |
| Amazon S3 | Image storage | US-East-1 |
| Doxy / Zoom for Healthcare | Telehealth video (HIPAA BAA) | US |
| Google Analytics 4 (privacy-safe mode) | Aggregate traffic | US |
A current subprocessor list is maintained by the DPO and updated within 30 days of any change.
Encrypted in transit. Encrypted at rest.
- TLS 1.2+ in transit for all traffic; HSTS enforced.
- AES-256 at rest (Supabase-managed); HIPAA-grade encryption for Iwere Care subsystems.
- Role-based access; two-factor authentication required for admin, volunteer-doctor, and instructor roles.
- Quarterly access audits by the Auditor; annual penetration testing by an external firm.
- Breach notification within 72 hours (GDPR) or 60 days (HIPAA) as required, regardless of jurisdiction.
We keep it as briefly as law allows.
- Active member records — for the duration of membership and seven (7) years after, to meet IRS and charity-registration obligations.
- Donor records — seven (7) years from gift date for tax substantiation.
- Clinical records (Iwere Care) — the longer of six (6) years or state retention requirements.
- Session logs — 90 days.
- Support tickets — 2 years unless there is an open matter.
- Newsletter opt-outs — retained indefinitely so we do not re-mail you.
US primary. EU · Nigeria secondary.
INC-USA is based in the United States; most data is stored in US data centers. When we transfer personal data out of the EEA or UK, we rely on Standard Contractual Clauses (SCCs) or equivalent safeguards. Members and patients in Nigeria access the Iwere Care platform through partner clinics under written agreements that mirror our obligations.
EU · UK. Your rights.
- Access — get a copy of your data.
- Rectification — correct inaccurate data.
- Erasure — the “right to be forgotten,” subject to tax-retention exceptions.
- Restriction — pause processing pending resolution.
- Portability — receive your data in a structured format.
- Objection — object to processing based on legitimate interests.
- Withdraw consent — any time, without affecting lawfulness of prior processing.
- Complain — lodge a complaint with your supervisory authority.
Requests: privacy@itsekirinationalcongress.org. We respond within 30 days.
California. Your rights.
- Know — what personal information we have collected about you in the preceding 12 months.
- Delete — subject to tax and charity law exceptions.
- Correct — inaccurate personal information.
- Opt-out of sale — we do not sell personal data. This right is automatically honored.
- Limit sensitive-data use — we do not process sensitive data for inferring characteristics.
- Non-discrimination — we do not deny service, charge different prices, or provide lesser service for exercising rights.
California requests via the same DPO channel; authorized agents accepted with signed authorization.
Under 13. Not directly.
The site is not directed to children under 13, and we do not knowingly collect personal information from children under 13 without verifiable parental consent. Iwere Academy youth programs are conducted through a parent/guardian member; youth cultural circles enroll the adult, not the child directly.
Iwere Care. HIPAA-covered subsystem.
The Iwere Care telehealth platform handles Protected Health Information (PHI). It operates as a HIPAA-covered subsystem with:
- Business Associate Agreements with every subprocessor touching PHI (video, storage, messaging).
- Encrypted-at-rest PHI with key rotation; role-based access limited to the treating physician, supervising Medical Director, and the patient.
- Audit logs for every record access, retained for six (6) years.
- Breach notification under 45 CFR § 164.404, within 60 days of discovery.
- A separate Notice of Privacy Practices provided at first visit.
We revise this periodically.
We may update this Privacy Policy from time to time. Material changes will be announced via email to members and on the site with at least thirty (30) days’ notice. The date at the top of this page shows the last revision.
Data Protection Officer. Write in.
For privacy questions, data requests, or to exercise a right listed above, write to:
DPO · Itsekiri National Congress USA
1717 N Street NW, STE 1
Washington, DC 20036
privacy@itsekirinationalcongress.org
+1 (779) 771-6151
We reply within 30 days — usually within a week.